Impressions of the Connecticut Hospice

On Friday afternoon, I rode a school bus to the Connecticut Hospice in Branford, battling a queasy stomach. I’m not one to get carsick (although it did happen to me once, about 10 years ago on a family vacation to the Grand Canyon). But this queasiness was not a matter of motion sickness; it was a psychological kind of unease. I knew I wanted to visit the hospice—but I couldn’t help picturing us (a group of about 70 bioethics students) tromping in like a group of grade-schoolers, peering into private rooms at what was obviously a private time in people’s lives. How could we take a “field trip” to a hospice without compromising the peace of its patients? The trip may have been bioethics-based, but I had my doubts about its morality.

New Image

Madeline Torres-Baird, Director of Social Work at the Connecticut Hospice, described the social work aspect of hospice care. Torres-Baird explained how her team assesses every family that comes in to see how they are coping with referral to hospice care, offers family and individual crisis counseling, and facilitates donations for patient care.

After about a 20-minute drive, we arrived at a place that looked approachable, even inviting: a gathering of grass lawns, fountains, large-windowed buildings, and doors that slid open into something like a hotel lobby. I noticed as we filed in that there was an empty ambulance parked quietly but conspicuously at the front curb, where we exited the bus. We climbed carpeted stairs—the kind you only ever see in people’s homes—and passed through hallways of framed artwork that varied in size and spoke calm colors into the room. Then we all lined up for oatmeal raisin cookies before being led into a large, dark room. The sensation of a childhood field trip crept up into my consciousness again, and it felt wrong. I worried about where they were going to take us next and whether it would be intrusive.

New Image 1

Sherra Stewart-Rego, Director of Nursing Fellowship at the Connecticut Hospice, provided general information about the unique mission of hospice care and the manner in which the program’s different branches come together to provide holistic end-of-life care.

Then the mood of the visit, or at least my skepticism toward it, changed. The staff began to introduce themselves, played an informative video about the purpose of hospice, and gave the impression in every way that visitors were quite welcome. Without setting foot in any private patient space, they led us out to a sprawling park with sloping grass hills and trees rooted right at the edge of the seaside. Waves stirred softly behind us as we all seated ourselves around a white balcony in the sunshine, and the hospice staff stood as a team at the opening of the balcony to explain their mission in more detail. Here are some of the key quotes from their opening descriptions that I think really embody the work they do:

New Image 6

Dr. Joseph Andrews, Medical Director of the Connecticut Hospice, emphasized the importance of supporting patients at the end of life through extensive palliative care. Notably, Andrews stated that although euthenasia and physician-assisted suicide are often hot topics for debate, “If palliative care is provided well and patient care is managed, then those issues won’t even come up.”

“As hospice members, it is not our purpose to change the family. It is our purpose to meet the family where they are.”

“Right from the beginning we have an idea of the needs of our patients, from physical needs to psychological needs, and whenever there is a subtle change our team can step in.”

“In no setting that I’ve ever worked in the hospital do patients have as much access to everything they need.”

New Image 3

Katherine Blossom, Director of Arts at the Connecticut Hospice, related the importance of the art therapy program in helping patients and their families to process thoughts and emotions, explaining that art “helps patients to tell their unique stories” and to “bolster the effects of the pharmacy.” She went on to state that “the autonomy of our patients becomes eroded bit by bit” as they near the end of life, but that “creativity is a sort of life force, and it also presents the ability to make choices.”

The staff members went on to describe the many and varied aspects of care offered to patients during and after their stay: medical support, social work, spiritual counseling, art therapy, and bereavement. Seamless complements to one another, each member of the team spoke their part, describing their particular facet of care with unmistakable sincerity and passion. The more I heard about their mission and the details of their services, the more I realized how many different aspects of a patient’s life hospice care seeks to address in what is often such a short (but significant) span of time. And as impressive as this approach was to me, it also, more simply, just seemed intuitively right. Patients’ needs at the end of life can vary enormously. Although the central component and founding principle of hospice is the medical care it offers, patients (no matter how near or far they are from their expected prognosis) are not reducible to the medical conditions they face—far more complex than that, they are human beings who have histories and families and multifaceted lives that call for multifaceted care.

Even in the way they treated us as visitors, welcoming us with warm
handshakes and cookies and an ocean view, it became clear to me during our visit that the staff of the Connecticut Hospice cares about all the small things that, together, truly make a person feel cared-for. I can only imagine how well that kind of thoughtfulness translates into end-of-life patient care.

For more information on the Connecticut Hospice, visit their website at http://www.hospice.com

About Jessica Hahne

Yale Scientific Magazine Editor-in-Chief, 2013 Assistant at the Yale Interdisciplinary Center for Bioethics
This entry was posted in Uncategorized and tagged , , , , , , , , , , , , . Bookmark the permalink.

2 Responses to Impressions of the Connecticut Hospice

  1. Nerissa says:

    I’m glad that you found your visit enlightening. :) My dad spent his final week or two there last year and they were so amazing. They were also really sensitive to our needs.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s